One of our students is seeking data on the prevalence of fatigue in Canada [Billing code from the ICD-10 (R53)].
Is this something she could access through DLI's pilot? If so, where do we start?
Or is this something she needs to request through the Graduate Student Data Access Program? (I read through the conditions and she's eligibile to use the service.)
https://www.cihi.ca/en/data-and-standards/access-data/the-graduate-student-data-access-program-gsdap
Answer
The Discharge Abstract Database (DAD) captures administrative, clinical and demographic information on hospital discharges (including deaths, sign-outs and transfers). CIHI is running a pilot project in which registered DLI users can access two research analytical files that contain de-indentified samples from the Discharge Abstract Data (DAD) for several sample years. Each file includes record-level data; one file focuses on clinical data, the other on geographic information. The DAD data files include information on key demographic, clinical and case mix variables.
Because of licensing restrictions, these files are available through the DLI’s Electronic File Transfer (EFT) service, which the local DLI contact can access.Please contact your Local DLI contact whose information is below for a copy of those files.
She should also be able to estimate from the DAD - bearing in mind that the populations of BC and Quebec are excluded from the samples.
For example, in the 2013 sample, 595 records reported R53 in "ICD10 Diagnostic code 1: most responsible for patient during hospitalization"; it's recorded in 17 of the 25 ICD variables. I didn't create any flags for individual ICD10 codes - R53 is collapsed into the ICDF214 flag variable, which perhaps should have fatigue added to the variable label.
She should also be able to estimate from the DAD - bearing in mind that the populations of BC and Quebec are excluded from the samples.
For example, in the 2013 sample, 595 records reported R53 in "ICD10 Diagnostic code 1: most responsible for patient during hospitalization"; it's recorded in 17 of the 25 ICD variables. I didn't create any flags for individual ICD10 codes - R53 is collapsed into the ICDF214 flag variable, which perhaps should have fatigue added to the variable label.
